BOYS
OF MECP2
Get Involved
Donate
My brother, Rohan, has a research fund called "Rohan's Quest for a Normal Life". It raises money for research for all the boys/kids with MECP2.
Donate here:
https://reverserett.org/take-action/events/rohans-quest-2018/#donate
Make a Video for a Boy with MECP2 Duplication Syndrome
I am asking all of you if you'd make a video message for a boy with MECP2. A list of there names and interests will be on this page of the website. You can send me your video to my email address (find on contact page) and I send them to the boys and I will put it on this website if you'd like. In the video, you can talk about your interest, and anything that comes natural to you! This is a great chance for the boys to make a new friend and for you as well! :)
List of kids with MECP2
You can find a list of the kid's names and their interests in this link: https://docs.google.com/document/d/1VWdgSDN72QjbaFEsBNkPzgRtVl6HPhSwUqx9Wbgly6Y/edit